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Showing posts from September, 2012

The Ethics of Pharma-Patient Relationships

It was fortuitous timing this week when I received an email from Denise Sibler, head of Basil Strategies and coordinator of the Doctors 2.0 & You conference in Paris, asking my opinion on the issue of ethics in patient-pharma relations.

"I can't identify a time when I wasn't interested in the ethical issues of health care and one of them is the pharma-patient relationship," Sibler said. "With the rise of the ePatient, many interactions and relations become possible, so new questions have arisen."

I'd just come from HealthCamp Kansas City where myself and three other patients were fortunate to be able to participate in a conversation with members of Eli Lilly's Open Innovation Team. Team members were seeking input on how to improve the clinical trial process by crowdsourcing ideas. Their focus was not simply on R&D but on the patient experience. Overall, the patient group's suggestions echoed those I heard during a similar conversation wi…

#HCSM Review - Sept. 19 Edition

The HCSM Review is a peer-reviewed blog carnival for everyone interested in health care social media. This edition is loosely based on the theme of motivation and how it plays into our roles as patients, providers and caregivers. 
Motivational Lessons
"I look back now and wonder how my working self would assess my own motivation and participation over the last few years. On a good day I'd be the perfect patient, self-motivated, engaged, determined. On a bad day I'd be the surly, non-compliant patient threatening to throw a cup (or worse) at my head. It's just luck of the draw." - Rusty Hoe, Living With Bob (Dysautonomia)

Lather Up: doctors resistant to patients’ requests for hand-washing "As patients we need to learn to work with what is until doctors and nurses are more accustomed to working in partnership with patients." - Martine Ehrenclou

Blogging and the Experience of Cancer Survivorship
"The apparent randomness of a cancer diagnosis shakes your se…

Side Effects

Tell your doctor if any of these symptoms, are severe or do not go away:
nausea
vomiting
stomach pain
heartburn or gas
diarrhea
constipation
decrease in appetite
weight loss
dizziness
drowsiness
tiredness
weakness
headache
sweating or flushing
confusion
difficulty remembering or concentrating
anxiety
uncontrolled, sudden body movements
shaking of a part of your body that you cannot control
decreased sensitivity (response) to touch
frequent or urgent need to urinate
difficulty urinating or pain when urinating
in men, difficulty achieving or maintaining an erection
back, muscle, or joint pain
pain, burning, numbness, or tingling in the hands or feet
swelling of the hands, arms, feet, ankles, or lower legs
dry mouth
hallucinations (seeing things or hearing voices that do not exist)
fainting
chest pain
slow, fast, or irregular heartbeat
shortness of breath
difficulty swallowing
double vision or other changes in vision
nausea
diarrhea
constipation
changes in sex drive or ability
drowsiness
increased sweating
dizziness
heartburn
sto…

#HCSM Review - Send In Your Submissions

What motivates you? What demotivates you?

On Wednesday, Sept. 19, The Afternoon Nap Society will host HCSM Review—the peer-reviewed blog carnival for everyone interested in health care social media. This edition will focus on the theme of motivation and how it play into our roles as patients, providers and caregivers.

Submitting a post is easy. Simply email a link to your post or posts (no more than two submissions per author) by midnight (ET) on Sept. 17. The more honest the post the better—this isn't about being a hero; it's about carrying on. For good measure, format your submission email as follows: 
Email Subject Line: HealthCare SocialMedia Review
Blog Title:
Blog URL:
Post Headline:
Permanent link to post:
Your Name: Name, Username, Nickname, or Pseudonym
Description or brief excerpt:

Learn more about HCSM Review by visiting HealthWorks Collective